Childhood Cancer Resource Committee

TN Childhood Cancer Awareness Calendar

 

TN State Cancer Plan 2013-2017

Childhood/Adolescent cancer is the number one cause of death due to disease in children younger than 20 years of age. Deaths from cancer exceed those related to cystic fibrosis, muscular dystrophy, asthma, and AIDS combined. Tennessee is a leader in treating these young cancer patients whose average age at diagnosis is six years old, subsequently resulting in the most years of life lost per person, compared to all adult cancers.³ Childhood/Adolescent cancers differ from adult cancers in many ways (refer to chart on page 6 of the 2013-2017 TN State Plan).

The Childhood Cancer Resource Committee developed five regional action teams comprised of representatives of over thirty childhood cancer organizations. Action teams set regional priorities and work together on statewide initiatives.

We unite to:

  • raise awareness
  • advocate
  • provide resources, and
  • make our voices heard

 

Please contact Jennifer Louis (jlouis5678@aol.com), the Childhood Committee Chair, for more information.

September is Childhood Cancer Awareness month.

 

Legislative Advocacy

U.S. and TN Capitol Hill visits.  Presentation of “Tennessee is Key to Ending Childhood Cancer’ to Members of Congress resulted in eight of nine United States representatives from Tennessee joining the Congressional Childhood Cancer Caucus.

Proclamations

Letters to Editor

Awareness

A statewide calendar of events is included on this page.

ABC-123 Healthy Kids in Tennessee:  Let’s Eat Well, Play, and Be Aware, Every Day– Awareness curriculum for preschool/childcare providers

Support

Back to School workshops for school staff, medical providers, and families addressing the physical, neurocognitive, and psychologcial effects of childhood cancer treatments.

Online resource Guide for Tennessee Families (projected completion January 2017).

ACTION TEAM CHAIRS:

East (Knoxville) – John Stewart

Middle (Nashville) – Jennifer Louis

Northeast (Johnson City) – Megan Quinn

Southeast (Chattanooga) – Bryan Humphreys

West (Memphis) – Alicia Huettel

 

COMMITTEE MEMBERS REPRESENT THE FOLLOWING ORGANIZATIONS:

Tennessee Hospitals by Region:

East:  East Tennessee Children’s Hospital

Middle:  Monroe Carrel Jr. Children’s Hospital/Vanderbilt-Ingram Center

Northeast:  Niswonger Children’s Hospital/St. Jude Affiliate

Southeast:  Children’s Hospital at Erlanger

West:  St. Jude Children’s Research Hospital

 

Tennessee Organizations:

Austin Hatcher Foundation for Pediatric Cancer

Butterfly Fund

Cooper Trooper Foundation

Cure4Kids

Emily’s Power for a Cure

Franklin 4 the Cure

Gabe’s My Heart

Gilda’s Club Nashville

Hoover Hope Foundation

Hospice of Chattanooga

Jade’s Fund

Katie’s Helping Hand

Kidz Team

Lana’s Love

Lily’s Garden

Live Lovely

Playing by Air

Ronald McDonald House of Chattanooga

 

 

National Organizations:

Alex’s Lemonade Stand Foundation

American Childhood Cancer Organization/Candlelighters

Coalition Against Childhood Cancer

Children’s Cause for Cancer Advocacy

CureSearch

Children’s Oncology Group Survivorship Guidelines

46 Momma’s Shave for the Brave (St. Baldrick’s)

Lighthouse Family Retreat

LiveStrong Foundation

Leukemia & Lymphoma Society

National Children’s Cancer Society

People Against Childhood Cancer

Rally Foundation

St. Baldrick’s Foundation

Cancer Support Community

 

BE AN ADVOCATE FOR CHILDHOOD CANCER RESEARCH:

Children’s Cause for Cancer Advocacy

People Against Childhood Cancer

Coalition Against Childhood Cancer

 

RESOURCES:

TN State Cancer Plan 2013-2017

ABC-123-Healthy Kids in Tennessee: Let’s Eat Well, Play, and Be Aware, Every Day (PowerPoint Presentation)

ABC-123-Activities Guidebook

Adult vs. Childhood Cancer (Comparison Chart)

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